|
The Australasian Blistering Diseases Foundation is a not-for-profit organization.
Aims -
- fundraising for research into life-threatening blistering diseases, supporting patients and their families by providing information and a network of supporters with similar conditions, medical professionals who can help;
Education -
- basic facts about the diseases
- information about treatment
- patient-doctor meetings
- biannual newsletters
Support -
- advice on living with the disease
- local support groups
- email discussion group
Research -
- encouraging research into the cause, diagnosis and treatment of blistering diseases
- research updates
- participation in clinical trials
Advocacy -
- increasing public awareness
- education for health care professionals
- gaining government support for expensive drugs that are not covered for "orphan" diseases in this category.
Our Objectives -
- to support patients and their families by providing information and a network of supporters with similar conditions and medical professionals who can help
- to fundraise for research into life-threatening blistering diseases
- to gain government support for expensive drugs and dressings that are not covered for 'orphan' diseases in this category
|